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The Information Market
2005
Last year's
market was such a success that we decided to do it again this year.
Board members Frederike
Lubiewski and Mira de Vries manned the booth. We had invited
a group that protests the use of isolation cells
in psychiatry, a very common phenomenon in the Netherlands, but no one
from the group showed up. The crowds were even larger than last year,
no thanks to the weather, more likely because this year was a national
holiday.
A new addition to our booth this year was our
petition to stop
medical research on children. We started it in response to a proposal
by the European Commission to require all drugs for European
children to be tested on children. It's not difficult to guess whose
lobbyists were behind this proposal. The responses from the public to
our petition were varied. Many people asked in surprise, "What?
Does that really happen?" Some people praised us for our efforts. One
woman even sighed, "Finally somebody is doing something about
it." There were, of course, also people who think drugs for European
children should
be tested on other children. Often these were parents who were only
persuaded to sign our petition after we pointed out to them that they
might themselves be
put under pressure to enroll their child in a testing program. Our
booth happened to be directly across from the Vegan Society's booth, so
visitors to the market could sign a petition against medical
experiments on animals on one side and against medical experiments on
children on the other side. We collected several pages of signatures.
Like
last year, the many
young physicians and medical students who passed our booth were in
general hostile to our ideas, and in particular opposed our
petition. "If we don't test drugs on children,
how will we develop new drugs for them?" The idea that there might
be too many drugs for children already was of course unfathomable to
the docs. One group of medical students told Frederike that they work
in a
neonatal intensive care unit doing research all day, and that they see
nothing wrong with that. Another physician said that she would allow
her own children to be used for medical research. What can you say to
someone like that? Two young physicians (apparently older
physicians don't visit markets) told Mira that most people aren't
intelligent enough to make decisions about their own health care.
Our most popular flyers, besides the memorial speech transcript,
were the ones dealing with psychiatric drugs. Many people took along a
sheet of tips on how
to stop taking them. Some of the people who came by told us that
they were being forced-drugged as outpatients. This was particularly
painful as our supreme court had ruled that same week that
court-ordered patients may not be drugged against their wishes off the
hospital grounds. We saw some people with obvious tardive dyskinesia
(movement disorders caused by neuroleptic drugs) come by. Frederike and
Mira
could do no more than exchange unhappy glances. One man who said he
works as a nurse in an institution for mentally disabled adults was
furious about our flyer which rejects involuntary commitment. How could
he do his work if he had to ask permission? Mira suggested that a
mentally disabled person would always have a guardian who could consent
to confinement, but this did not placate him. He even
threatened to "have something done about" us. We thought that
was a great idea, as it would certainly draw attention to our
viewpoints. We made sure he had our address.
Our new flyer offering tips on how to take fewer drugs
in general also generated not a little interest. Some people said it
never occurred to them before that they should question their doctor's
prescriptions. Others told us their own stories of woe.
One man quite rightly criticized us for not having
a flyer about privacy. We're going to work on that right away.
Meanwhile, we were able to inform him that if he lives in the greater
Amsterdam area, anybody who works in any pharmacy in the same area and
also knows his name and birth date, can look up in the computer exactly
which drugs he's been prescribed. The man's mouth literally dropped
open
with surprise. We advised him to go to his pharmacy and and fill
in a form for blocking outside pharmacies from accessing his
information. This procedure exists, probably because doctors won't
stand for invasions of their and their families' privacy. The
general public hasn't been informed about the pharmacy network, let
alone about the possibility for exempting oneself.
We hope the public was able to learn valuable
information from us. We are very certain we learned a great deal from
them
and from the experience. We plan to be
there again next year.
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One of the first visitors to our booth was the
vice mayor of Izmir,
who was so kind as to send us the photograph on the right. Many thanks.

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